Anna Cate had a great check up at the Natural History Study clinic last weekend. As you read from my earlier blog, I was going into our appointment with fear of hearing the words that Rett may be taking a bigger toll on her body, but I am THRILLED to report those words were not SPOKEN!
In fact, we heard how strong she is! Yes, she is as strong as an OX! Anna Cate is pretty much solid muscle and the grip that she has on her hands is that of a suction cup on a mirror! Her doctor couldn’t even get them apart! However, she has no problem releasing them to hit her ball back and forth with you or when she wants to release them.
Patience is key in her recovery from surgery, along with therapy. So we are going to increase the amount of physical therapy she receives weekly and hope that she will regain her strength back quickly!
It is also wonderful to see all the families we have met over the years since Anna Cate’s diagnosis and to see their beautiful daughters too! I love seeing how the girls have grown and skills they have gained since our last visit. Being at clinic is the one place where you do not have to explain anything about your daughter, because everyone understands.
As we were leaving, there was one family who came up to us and said that they love seeing Anna Cate every year, as she is a breath of fresh air to them and is their inspiration for their daughter. As they walked away, Anna Cate said “bye” and blew them a kiss. Just like I have to remind myself now with her recovery to be patient, I reminded this family that repetition is key. Anna Cate did not wake up one morning and do all that she can. We practiced over and over and over again until finally one day it clicked. And when the day comes ,when a word you have been working on comes flying out, you will realize all the repetition and patience was well worth the wait!
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